CHD Facts

A Congenital Heart Defect (or CHD) means an abnormality of the heart that is present at birth. In general, there is no known cause or cure for heart defects.  Congenital Heart Defects are the most common type of birth defect, affecting nearly 1 out of every 100 children born in the United States and across the world, and are the leading cause of birth-defect related deaths.  Some CHD's are minor, but approximately 50% will require some sort of invasive procedure (such as open heart surgery). 


There are 1.3 million Americans alive today with some form of congenital heart disease, about half of which are below the age of 25.    


Resources for additional information about CHD's:

"It's My Heart," by the Children's Heart Foundation (contact IHH for a free copy)

The Children's Hospital of Philadelphia - Wonderful diagrams and video's about a variety of CHD's

American Heart Association

Primary Children's Hospital

A majority of IHH members are or have been treated at Primary Children's Hospital, though it is not a requirement to be a member. 


The Heart Center at Primary Children Hospital in Salt Lake City, Utah is the premier provider of cardiac care for children in the Intermountain West, and treats patients from across the country. PCH has a Cardiac Intensive Care Unit (CICU) as well as a portion of the surgical recovery floor exclusively for children with cardiac conditions.


There are currently three cardiothoracic heart surgeon's a Primary Children's, and more than 30 cardiologists. They have outpatient offices at PCH as well as in Riverton, UT with traveling cardiology clinics in Jackson, WY, Pocatello, ID and Idaho Falls, ID.


According to the U.S. News and World Report Hospital rankings, the Primary Children's Heart program is ranked #22 in the country.    

There are more than 40 known Congenital Heart Defects. Here are just a few:
  • Aortic Stenosis
  • Atrial Septal Defect
  • Atrioventricular Canal Defect
  • Bicuspid Aortic Valve
  • Coarctation of the Aorta
  • Complete Congenital Heart Block
  • Congenitally Corrected Transposition of the Great Arteries
  • Coronary Artery Anomaly
  • Dextrocardia
  • DiGeorge Syndrome
  • Double Aortic Arch
  • Double Outlet Right Ventricle
  • Ebstein's Anomaly
  • Hypertrophic Cardiomyopathy
  • Hypoplastic Left Heart Syndrome
  • Hypoplastic Right Heart Sydrome
  • Interrupted Aortic Arch
  • Kawasaki Disease
  • Long QT Syndrome
  • Marfan Syndrome
  • Mitrial Valve Prolapse
  • Noonan Syndrome
  • Patent Ductus Arteriosis
  • Pulmonary Atresia
  • Pulmonary Stenosis
  • Single Ventricle
  • Tetrology of Fallot
  • Transposition of the Great Arteries
  • Tricuspid Atresia
  • Truncus Arteriosis
  • Ventricular Septal Defect
  • Williams Syndrome